Casdoks last blog post..Wasn’t prepared

I highly suggest that Veronica research the following things – and tell her doctor to test her for them (doctors don’t like to test for these things, because it’s not a simple blood test, and/or they aren’t familiar enough with them)…
1. gluten intolerance/celiac disease (for the headaches and stomach problems!!! I can totally avoid migraines and usually avoid other types of headaches for the first time in my teenage/adult life!)
2. fibromyalgia and chronic myofascial pain (fibromyalgia can mimic CFS, but it’s not the same thing, and from all her joint and pain issues – I am guessing she has the above two things – not CFS).

Please, please, please – ask me any questions if you guys decide to start researching any of these things – I have learned so much in the past almost-year, and would love to pass on the information to someone who could use it. I also, along with a gluten intolerance, have a chemical sensitivity, so have gone fairly ‘green’ which has helped many symptoms as well. If you need links to symptoms and how to diagnose any of the above mentioned items, let me know and I’ll send those along as well.

I’ll copy this comment onto Veronica’s blog as well. I HOPE this info can help you – I WISH someone had told me about these things years ago – I could have avoided so much pain and fatigue. I was finally getting to where I had energy, was feeling good, and was on a regular and actual difficult exercise regimen when I found out I was pregnant again. The pregnancy has exacerbated my symptoms so I can’t fight the diseases I have as well, but I do know enough that this pregnancy isn’t as bad as my last one.

will be thinking of you both..

hope you get some answers..

big hugs..

Tazs last blog post..the change

julies last blog post..Hey! I got more smarter!

That talk sucks, the “you have a disease” conversation with the doctor, but it’s also a relief, because you can stop wondering what the hell is wrong with you, you can stop thinking it’s something you did or didn’t do, you can stop worrying it’s cancer or TB or some random tropical virus.

Even if there is no treatment, knowing what is wrong means that Veronica can learn from others with the same thing — that there are things she should avoid, there are things she can do that might help.

And just because there are no treatments now doesn’t mean they won’t find something in the future…the drug that I depend on, the drug that keeps my Crohn’s from making my life completely miserable, has only been around for 15 years.

It sucks. And I am really sorry your family is going through this.

julies last blog post..Hey! I got more smarter!

I, too, was hoping this story was going to be about getting through the rough teenage years with a too-smart-for-her-own-good daughter. But this? THIS just breaks my heart on so many levels.

Hyphen Mamas last blog post..Two Turtle Neck Dickies, and a BeeeEEEER In a Tree

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