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	<title>Comments on: Fear.</title>
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	<link>http://frogpondsrock.com/2009/08/fear/</link>
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		<title>By: EDS Alert Newsletter No. 34 &#171; EDS Alert Newsletter</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-15368</link>
		<dc:creator>EDS Alert Newsletter No. 34 &#171; EDS Alert Newsletter</dc:creator>
		<pubDate>Sat, 19 Sep 2009 03:52:36 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-15368</guid>
		<description>[...] • Blog: Fear. &#124; Frogpondsrock&#8230; [...]</description>
		<content:encoded><![CDATA[<div style="padding: 1em; background-color: #DCB1E5;">
<p>[...] • Blog: Fear. | Frogpondsrock&#8230; [...]</p>
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		<title>By: Achelois</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14793</link>
		<dc:creator>Achelois</dc:creator>
		<pubDate>Sun, 30 Aug 2009 22:17:14 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14793</guid>
		<description>Oh my post wasn&#039;t meant to cause fear. I am so sorry. If it helps that was a very bad day. This week med&#039;s have worked well and I am just bendy with a grandchild to keep me laughing.  Also am just about to get checked out for menopause so some symptom worsening may be because of that.  Life is good despite the EDS - others have so much more to endure.  This disability makes one resilient and that helps so much.  Also the earlier the diagnosis the better for the individual so these days when parent&#039;s know about it they are informed unlike mine were all those years ago.  There is hope and a strong EDS community.  Achelois xxxx</description>
		<content:encoded><![CDATA[<p>Oh my post wasn&#8217;t meant to cause fear. I am so sorry. If it helps that was a very bad day. This week med&#8217;s have worked well and I am just bendy with a grandchild to keep me laughing.  Also am just about to get checked out for menopause so some symptom worsening may be because of that.  Life is good despite the EDS &#8211; others have so much more to endure.  This disability makes one resilient and that helps so much.  Also the earlier the diagnosis the better for the individual so these days when parent&#8217;s know about it they are informed unlike mine were all those years ago.  There is hope and a strong EDS community.  Achelois xxxx</p>
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		<title>By: tiff</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14749</link>
		<dc:creator>tiff</dc:creator>
		<pubDate>Sat, 29 Aug 2009 06:48:40 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14749</guid>
		<description>Hugs, Kim.

Ivy has PH too and it IS scary.
It&#039;s all frightening when it comes to your kids.

No advice or words of wisdom just complete understanding of the way you feel.</description>
		<content:encoded><![CDATA[<p>Hugs, Kim.</p>
<p>Ivy has PH too and it IS scary.<br />
It&#8217;s all frightening when it comes to your kids.</p>
<p>No advice or words of wisdom just complete understanding of the way you feel.</p>
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		<title>By: Julie</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14724</link>
		<dc:creator>Julie</dc:creator>
		<pubDate>Fri, 28 Aug 2009 03:39:45 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14724</guid>
		<description>Oh, man.  Nobody ever  tells you how hard it is to have kids.  We all assume we are going to have perfect wonderful happy smily kids.  Then reality bites us in the ass.  

Maybe the weather will get better...a few days of sunshine would help.  Things always feel worse and more depressing when it&#039;s endlessly gloomy.

hugs.  Julie</description>
		<content:encoded><![CDATA[<p>Oh, man.  Nobody ever  tells you how hard it is to have kids.  We all assume we are going to have perfect wonderful happy smily kids.  Then reality bites us in the ass.  </p>
<p>Maybe the weather will get better&#8230;a few days of sunshine would help.  Things always feel worse and more depressing when it&#8217;s endlessly gloomy.</p>
<p>hugs.  Julie</p>
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		<title>By: Jientje</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14712</link>
		<dc:creator>Jientje</dc:creator>
		<pubDate>Thu, 27 Aug 2009 19:27:01 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14712</guid>
		<description>Good vibes coming your way, and indeed, Lou is right. Just take it one day at a time. You did have some good news too eh?</description>
		<content:encoded><![CDATA[<p>Good vibes coming your way, and indeed, Lou is right. Just take it one day at a time. You did have some good news too eh?</p>
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		<title>By: plumtree</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14708</link>
		<dc:creator>plumtree</dc:creator>
		<pubDate>Thu, 27 Aug 2009 17:48:34 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14708</guid>
		<description>The antibiotics are for his heart, just as the dental assistant said above. I will be interested to know what the cardiologist says about David. I am in awe of how you have battled for your children.</description>
		<content:encoded><![CDATA[<p>The antibiotics are for his heart, just as the dental assistant said above. I will be interested to know what the cardiologist says about David. I am in awe of how you have battled for your children.</p>
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		<title>By: lceel</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14702</link>
		<dc:creator>lceel</dc:creator>
		<pubDate>Thu, 27 Aug 2009 12:39:00 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14702</guid>
		<description>There&#039;s no sense in being afraid.  You just deal with it - one day at a time.  It&#039;s all you, or anyone, can do.</description>
		<content:encoded><![CDATA[<p>There&#8217;s no sense in being afraid.  You just deal with it &#8211; one day at a time.  It&#8217;s all you, or anyone, can do.</p>
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		<title>By: Barbara</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14701</link>
		<dc:creator>Barbara</dc:creator>
		<pubDate>Thu, 27 Aug 2009 11:27:58 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14701</guid>
		<description>Oh love, thank you for your support when you&#039;ve got all this going on as well.  Shall we lean on each other?  I had no idea having children would be so heartbreaking.

Well done to Isaac though.  What a good boy he is!</description>
		<content:encoded><![CDATA[<p>Oh love, thank you for your support when you&#8217;ve got all this going on as well.  Shall we lean on each other?  I had no idea having children would be so heartbreaking.</p>
<p>Well done to Isaac though.  What a good boy he is!</p>
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		<title>By: Tanya</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14698</link>
		<dc:creator>Tanya</dc:creator>
		<pubDate>Thu, 27 Aug 2009 08:52:55 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14698</guid>
		<description>I would be terrified for my children too. All you can do is be there for them, and help whne they need it and you are definately doing that.

You know they are brave though, and at least they (mostly) know what they are dealing with which is better than how things were before the diagnosis.</description>
		<content:encoded><![CDATA[<p>I would be terrified for my children too. All you can do is be there for them, and help whne they need it and you are definately doing that.</p>
<p>You know they are brave though, and at least they (mostly) know what they are dealing with which is better than how things were before the diagnosis.</p>
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		<title>By: river</title>
		<link>http://frogpondsrock.com/2009/08/fear/comment-page-1/#comment-14697</link>
		<dc:creator>river</dc:creator>
		<pubDate>Thu, 27 Aug 2009 08:28:36 +0000</pubDate>
		<guid isPermaLink="false">http://frogpondsrock.com/?p=2657#comment-14697</guid>
		<description>Please don&#039;t take this the wrong way....David is such a big-hearted boy.  I hope there is a treatment that helps his heart.</description>
		<content:encoded><![CDATA[<p>Please don&#8217;t take this the wrong way&#8230;.David is such a big-hearted boy.  I hope there is a treatment that helps his heart.</p>
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