I would like to say thank you.
Thank you for your kindness and concern.
Thank you for your supportive comments on this and on Veronica’s blog, thank you for the facebook messages, twitter conversations and thank you for the emails and offers of help.
Your support means a lot to Veronica and I, with each comment left or prayer offered we feel less alone and I know that I feel less terrified.
I have lifted this from Veronica’s blog, Veronica wrote this yesterday.
Oh internet, I am shattered after this afternoon. They recannulated Evelyn in order to take lots of blood, only to have the line kink and require lots of fiddling with.
Eventually they got the line working again (I’ll point out here that it was nothing anyone did wrong, just a thing that happens), while Evelyn cried, loudly. Sucrose, normally the liquid saviour of the gods – or more accurately the saviour of tiny babies undergoing painful procedures, helped, but it wasn’t as good as previous times.
Eventually it was done though and thus began the lumbar puncture ordeal.
The first needle got us nothing. The second needle got us blood. The third try got us mixed spinal fluid and blood, but not enough to be useful for testing.
The doctor was so apologetic, but she will have to have another lumbar puncture tomorrow.
It wasn’t easy to watch. She screamed so hard that she turned blue. Then once it was over, she was pale and miserable, until I managed to feed her. She sweated everywhere and gave herself a heat rash.
I was fine during it, but I’m not sure whether I want to cry or throw up more now.
I am pleased that Veronica has a place where she can share her fear.
I babysat Amy and Isaac yesterday so that Nathan could be there with Veronica for the Lumbar Puncture.
Today as my girls have to go through the whole awful procedure again, I will be at work at the Off Centre in Salamanca. So close to the hospital but so far away.
I hope Nathan makes it to the hospital in time to hold Veronica’s hand.
I hope the Doctor gets some spinal fluid with her first attempt today.
I am hoping like mad for a lot of things internet and I am ever so grateful that you are here hoping with us.
EDITED 11 am
Because the spinal fluid has to be sent to Melbourne as well as Adelaide, the Paeds are not going to do another Lumbar Puncture until Monday. I am now feeling slightly better.
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All my love with Veronica, Evelyn, you and the family today.
Thank you Marita. thank you
Oh Kim I feel sick just reading about what Evelyn & Veronica (and all of you) went through yesterday-and are still going through.
I’m thinking of you & your family, I hope there will be some answers for Evelyn as soon as possible.
X Kate
Thanks Kate, I feel a bit ill myself but the fact that you do as well helps me to feel less sick, if that makes sense.
oh my god. that poor wee darling.
Oh I know Toushka, reading Veronica’s account of the LP made me go all cold.
Empathetic tears here. And so many good wishes for all of you. I will cross everything that the next lumbar puncture is both easy and useful.
Easy and useful is a good wish. Ev, doesn’t have to have a LP until monday now, so that is a small relief.
I’m hoping with you
Thank you
So there’s no weekend delivery between hospitals?
What if there was some kind of emergency?
Thankfully there isn’t and I suppose there would be procedures in place if any did arise.
Thankful that Evelyn gets the weekend off to be cuddled and loved.
Thinking of you, Kim, and sending blessings and hopes that Monday will go smoothly for sweet little Evelyn.
Thank you Janet xx
So emotionally painful for you all to not be able to take this away from baby Evelyn. So hoping that all the testing in the world comes back with clear, curable answers.
Thoughts and prayers to you all.
Oh! Is there anything harder in this world than medical procedures for little ones!!?? Hang in there, hope they have answers for you all very very soon!