So I will just jump right in and start burbling away. Yesterday (Friday) Veronica had a 2.30 appointment with our family GP. The spouse needed to see the quack as well, so the receptionist squeezed Jeff’s appointment in just after Veronica’s.
Jeff and Vonnie went in and saw the doctor together and he has referred her to the Genetic clinic at the hospital. So the wheels are in motion. It could be weeks before we get an appointment but we are heading in the right direction. YAY….
Veronica has written a more detailed account of her appointment here.
David can dislocate his knuckles, he only showed me this new trick of his after I mentioned that Veronica might have some hypermobility issues. So now I am wondering if Dave’s “Severs Disease” has been wrongly diagnosed as well. *sigh*
Yesterday evening a peacock just wandered into the yard.
He wandered around for a bit, said hello to the girls ( my chooks) and then wandered back into the bush.
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Hmmm, aren’t peacock meant to taste delicious?
Veronicas last blog post..And we’re off to see the Wizard!
Well, that was my first thought too.. but your father said they taste like shit…
Ahhh, a rare sighting of the Rabid Feather Duster Monster!
You were lucky he didn’t offer to “collect your errant dust bunnies” for you 😉
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what a beautiful looking peacock..
there not native to australia though are they?
so you have a few animals then.. hehe
a cat, a dog, chooks, frogs and fish? 🙂
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Isn’t Sever’s Disease something to do with the feet? David doesn’t also dislocate his ankles does he? My daughter and I are both able to turn our feet and walk on the sides of them.Me, not so much anymore, with the stiffness I’ve been developing. At the hospital once for a sprained foot her doctor thought she had broken the ankle because she was resting her foot on its side.
As far as I know Kim its ‘normal’ for people with undiagnosed EDS or HMS to be given various incorrect diagnosis along the way. Growing pains is typical of this as are things like osgood schlatters disease(sp). You might want to start asking around the family…do people have high arched palates, is there much gum disease or issues with teeth, can anyone put their fist in their mouth, can they do the things in the beighton scale, any gymnasts or dancers? Are there people with lots of unexplained injuries, does anyone have the attention seeker label etc. Funnily enough what has been described about your MIL is uncannily close to the description of my maternal grandmother.
I hope you’re doing ok Kim and feeling a little better now the wheels are rolling. Hugs and love BG x
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Do you have a peacock?:)) I have never heard of such diseases:(( It’s the worst to see that your child is suffering but you can’t do anything because you don’t know what is it:(
Wow! The most exotic thing we have wander into our backyard is the neighbor’s white cat.
Oh, wait. There was that time with the skunk. 😉
That is a little bizarre. A peacock wandered into your yard? Weird. Really weird.
It’s good that Veronica is getting further testing. And it sucks that this is a possibility.
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A wild peacock! You do have all the good tricks up your sleeve, don’t you?
The great thing about reading blogs from all over the world, is realizing that these disorders and such are SO WIDE SPREAD, yet so little is known about them.