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My brain is very annoying.

It just goes ahead and does its own thing, skipping merrily along any number of tangential paths, spinning off in any direction it likes while the logical side of me gets very grumpy waiting for my brain to behave itself.

I can not explain to you properly how Amy’s sensory processing issues affect her because when Veronica explains Amy’s difficulties to me my brain misbehaves and wanders off into a ceramic daydream and I only process bits of the information. It is bloody annoying.

It was the same when Mum was dying. We needed to go to all the appointments as a threesome because both Mum and I relied on Veronica to remember all the information and then pass it back to us, sometimes Veronica had to repeat herself numerous times before it all sunk in. When Mum was in palliative care the doctor was showing us an X-ray of Mum’s shoulder and talking about the cancer in her bones and all I could see, was that the line of Mum’s rib cage would make a very nice shape on a large pot. *sigh*

As I understand it Amy sees her world very differently, it is like she is in a room with a hundred televisions all turned up as loud as they can go and all on different channels. The world screams its information at Amy and she cant handle it very well.

I don’t think that I would handle it very well either.

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  • Kristin (Wanderlust) August 14, 2010, 8:29 am

    I know you said a bunch of stuff about how brains function but all I can think is what a gorgeous photo that is.

  • Marylin August 14, 2010, 8:41 am

    *hugs*

    Sometimes I feel like there’s just too much going on for me to focus on any one thing at a time too. I can’t imagine how hard it must be for Amy (and Max to a certain extent too I think) to live in a world where you can’t tune anything out.

    Love the photo!
    I have the one you sent me as a screensaver now, thankies! xx

  • Achelois August 14, 2010, 9:28 am

    Wow amazing photo.

    I don’t know why I bother going to hospital appointments really because on the ‘important’ ones I rarely have any memory of what happened & who said what.

    Perhaps Amy could do with a remote control to teach herself to put the mute button on. Jokes aside – it must be stressful for her.

    I rarely have a moment when in conversation I don’t have totally unrelated thoughts pop into my head. It drives my OH mad when I suddenly blurt out seemingly unrelated conversation but to me its seems all one & the same. I daren’t tell him the blurty out bits are only the half of it. Open the doors to my mind & there’s so much going on it even irritates me some days!

    Just off to click the link to sensory processing issues.

    Oh yes – not posting as sulking. Have temporarily mislaid my lead thingy that plugs into the laptop from my camera to upload Glastonbury Tor Crip Pics…..

  • Jayne August 14, 2010, 11:12 am

    (((hugs)))

  • Watershedd August 14, 2010, 11:17 am

    We all have our challenges and we all process information differently. For me, it’s about digging for information; to be informed is to be armed for defence or war, whichever is needed. It can make me appear very clinical, practical, even callous, but that’s simply not it, it’s just how I cope. I like to see what’s coming at me, that way I can prepare contingencies. It drives the GOFA mad.

    The GOFA, as I’ve said, deals with the crises as they arise. Plans change rapidly or coalesce out of nothingness in a period of minutes or hours. He is the master of dealing with urgency and hence, very good at the NOW!

    Both the GOFA and I deal the immediate well, but sometimes that means we don’t process the emotions until later. The diversionary thoughts in your head, I suspect, allow painful news to seep more gradually, protecting your heart from the sudden shock that you fear. There’s nothing wrong with any inborn method – it’s just who we are. sometimes, when there’s too much information, I take out a notepad so I can look back later. I have a good memory, but often the detail eludes me.

    Amy will be fine. She is getting the love from her family who are finding the specialist guidance she needs and she will grow and master her world in her own way and blow you all away. X

  • Pixie August 14, 2010, 11:43 am

    Yes,I know what thats like.its kinda how my brain deals with my ADHD.

    hugs to all

  • sharon August 14, 2010, 1:39 pm

    Regardless of any of the diagnostic labels Amy may acquire, remember we all process things differently, we all have different strengths and weaknesses. That’s why working together can solve problems, explain actions/reactions and generally improve life for everyone.

    After two run-ins with cancer my mind and body work differently to how they were before. My brain works differently since I had the chemo-induced stroke. My inhibitions changed, so did my temperament and abilities. As a family we have all had to come to terms with those changes and as a family you will all come to terms with helping Amy make sense of the world around her and how she can best manage her responses to it.

    You are strong, well-grounded people and, though the path ahead is unclear, I’m sure that together you’ll be able to accommodate the challenges along the way.

    xox

  • river August 14, 2010, 5:01 pm

    Aaah Kimmie, my mind works just like yours. Information is fed to me and I’m expected to absorb it and understand immediately. I’ve learned to pick out key words in spoken or written information and process things that way. The details can be worked in later.
    For instance, at work; I’m at the checkout doing my thing, and a sheaf of papers is passed to me with the instruction to read this when you have a minute(ha ha, with a line of customers waiting?)then sign the back. Later when the stuff is being reviewed I’m often asked if i actually read it since I don’t seem to recall it. Well, yes I read it, but not in entirety, I skimmed the key points and understood enough.
    Yet, in primary school back in the 60’s, we had “reading comprehension” tests that I always did well in.

  • badness jones August 14, 2010, 11:02 pm

    Hugs Kim.

  • Mrs.Oh August 15, 2010, 1:42 am

    *hugs* Kim – I think we all wish we had an on/off switch at times.

    I won’t even say what Wayne’s ascii art looks like…. 😉

    Anywho – I posted some pictures of our cosmic bowling adventure for you!

  • Barbara August 15, 2010, 5:06 pm

    My brain plays music to me. All the time. I find it quite hard to take things in sometimes.

    It does it very loudly though when I have to think about things that I don’t want to think about. That’s not always a good thing.

    Love the picture.

  • Kelly August 17, 2010, 1:13 pm

    I ssem to have random melodies sounding in my head at times, and it gets so ANNOYING! I completely understand where you’re coming from.

    I would imagine Veronica might get frustrated if she knew? I know I always had a weakness of dazing off as well and not ‘really’ paying attention.

    Staying on one job until it’s done has seemed to help me overcome much of this problem. Amy’s like me, I don’t process information very well either 🙁

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