I have words internet, great piles of them are stored in the mound of my mind but for the life of me today, I can not manage to pull out the ones that I want.
They are tricky these words of mine, they like to come out and play when I am in the shower or driving the car. Sometimes my own eloquence takes my breath away and I think, “Yes! This! This is what I need to say,” and the words shimmer with delight and congratulate themselves, then quietly vanish at the next red light or the sound of the telephone.
These few words that you are reading now have been pulled reluctantly to the surface, each letter has resisted being made solid on the page of this blog, preferring instead to swim about in solitude.
Yesterday was Father’s day, I had to go into the city to drop off some cups that are going to be used in a local Tassie film Breeding in Captivity, (more about that later) it was such a beautiful spring day that we decided to go for a bit of a fish.
Evelyn has been having seizures since Wednesday and I am skittish and unsettled. The wheels of the medical profession turn slowly, oh so slowly and we have had to wait until today (Monday) to begin any discourse with the hospital staff. I am by nature an impatient person and waiting for anything does my head in, waiting for answers about the health of my family is a special kind of nightmare. I like to be doing, something, anything,everything all at once and so fishing with the boys was a welcome distraction.
As were the seagulls.
The tide was running and the current was strong ,”The Spouse” grumbled as the tide took his berley away but the seagulls screeched in delight at the free snacks we were providing and I had fun with the camera.
Now I am going to walk around in circles, picking things up and putting them down until Veronica rings me and tells me what’s the plan with Young Miss Evelyn.
*Updated*
The plan is for Veronica and Evelyn to go into the hospital tomorrow and hang around in Emergency until something is done.
*sigh*
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Oh Kim. This beautiful post contains heartbreak as well as the soaring birds. I am so sorry. I will have everything crossed for you all.
Oh my dear friend. This is when I wish I was not here but there with you to sit beside you quietly. With you knowing that if you want to you can scream & shout and I will still be there. But you, will not do this, you will be there, loving, caring, worrying for your beautiful family. The screaming silently deafening your soul. I cannot make it better but I can sit ‘virtually’ by your side. Epilepsy is a large part of our family as you know but it does not define it. Over on Veronica’s blog I have promised I will not google seizures in newborns because at this time that is not helpful is it. What is, is that you keep writing here so that we your internet family can try in our small way to help you know that you are not alone in this. I, despite the oceans between us am by your side. xxx
ok I have just spoken to a friend who is a midwife. Without wanting to scare you unduly. I think perhaps you should consider taking Evelyn back to the hospital before the scheduled clinic appointment to get the jaundice treated. There is a possibility that the seizures are being caused by the ongoing jaundice. It is critical in newborns, particularly prem babies that this is addressed to avoid potential ongoing problems. Veronica, I expect you want to shout at me and say this is just the type of comment you hate, people interfering and writing like this. But I know that you know me well enough to know that I wouldn’t write it unless I cared. If it turns out that it is all nothing to be worried about then so be it but with very young babies especially prem babies ( and I was one) it is not unreasonable to expect prompt action from the medical profession. They would rather you took Evelyn to see them sooner even it it turns out that there is nothing to worry about. I hope I haven’t made you cross Veronica by writing this. It is not my intention but I would not sleep tonight had I not said what I have. Please take Evelyn to see a medical professional who is expert in the care of premature babies as soon as possible. (If its nothing then you can rant at me forever)
xxxxxx
Hey lovely,
The jaundice is under control and is really doing nothing but adding an extra symptom to the mix. She’s less jaundiced than when she had the last set of bloods drawn , it just hasn’t gotten any better. She’s well below the line of having problems with it, even for a preemie (they’re working on the preemie charts for her) and I don’t think it’s a concern, in and of itself.
xxxxx
xoxox
How I wish I could wave a magic wand and make everything right with Evelyn. Love and hugs.
Hang around until something is done? What kind of dumba*** plan is that for a tiny baby? I would have thought seizures in a newborn would warrant immediate examination. Perhaps they’ll keep an eye on her in the waiting room and see how many times she seizes before calling in the experts?
Your seagull photos are just beautiful.