Out of the mouths of babes.. *sigh* Amy looked at my Mum in her hospital bed and then very solemnly told me, “My Nanny is very sick”.
I had to agree with her, “Yes Darling, Nanny is very sick.”
I don’t know what is harder, writing about Mum and her cancer knowing that she reads my blog. Or writing about Mum with the thought in the back of my mind that she mightn’t actually get to read this post.
Shit. Shit. Shit. Ratbrainshitfuck.
We had been going really well. The pain meds were working and the steroids Mum was taking to help her breathe, had given her a healthy appetite and a nice little boost of energy.
The fact that the cancer had spread into a couple of spots in the back of her skull and jaw as well as into her spine was secondary really. We were just going to give those pesky bone mets a quick zap or two of radiation and then it was back to normal. Well as normal as possible.
When you are living with a terminal illness you don’t stop making plans and looking towards the future. You grab each pain free moment and embrace it.
Mum and I weren’t quick enough grabbing our moment and we wasted three pain free weeks waiting for doctors and eventually having radiation.
The first lot of five zaps to Mum’s skull and jaw were completed and the only side effects were loss of appetite and some residual tiredness. Most importantly Mum still had all her hair. The ‘wig in waiting’ was still waiting.
Last week a CT scan ordered by Mum’s Doctor, showed that the bone mets in Mum’s spine had fractured a vertebrae and so we started another round of radiation on Wednesday the 10th of June.
By Friday, Mum was quite annoyed that her hair had started to fall out and she was frustrated that she was tiring so easily.
Saturday the 13th of June I needed to have Mum admitted to hospital. The decline in Mum was rapid and frightening. Mum had suddenly become very frail overnight and she was a bit confused as well. Mum couldn’t walk without hanging onto my arm and she just didn’t have the strength to dress herself. Her pain levels were quite high and I was very worried.
Once I had admitted Mum to hospital I felt equal amounts of relief and fear. I was relieved that Mum was safe and being cared for. And I was frightened at just how rapidly Mum had gone downhill. I was frightened that now Veronica and I, who had been with Mum every step of this horrible journey would be left out of the loop. Things were suddenly spiralling out of control, out of MY control and I was afraid.
Afraid that the staff at the palliative care unit wouldn’t care for Mum properly. Afraid that they would treat Mum’s frailty as normal. Afraid that this isn’t just a glitch, that maybe this is the beginning of the end.
Afraid. Afraid. Afraid. I am Afraid.
The phone rang here at ten past seven this morning and I nearly jumped out of my fucking skin. When the caller said they were from Calvary’s Cardiac Centre, I nearly had a fucking cardiac myself. The receptionist was only calling to cancel Davids appointment for his echocardiogram today and blah de blah, blah blah. Phew.
Instead of sending David to school today I will take him in to visit Mum. It will be a shock for Dave but at the moment I am not prepared to waste any time at all.